Last week, Martin attended the Hugh’s Law drop-in event in Parliament.
This event was a valuable opportunity to hear directly from families affected by childhood cancer and the issue of financial support available to them.
What is Hugh’s Law?
Hugh’s Law would introduce a financial safety net for families who suddenly find themselves caring for a chronically ill child. It proposes a time-limited, non-means-tested grant of £750 per month, starting from day one and lasting for up to three months. This grant would be signed off by the child’s consultant, with payments reviewed monthly based on the child’s treatment needs and condition.
Hugh’s Law is named after Hugh Menai-Davis, who tragically died of cancer aged just six in 2021. The campaign is led by his parents, Ceri and Frances Menai-Davis, who are turning their pain into purpose to help other families in need.
MPs are now organising a cross-party letter, coordinated by Chris Hinchliff MP, to send to the Minister for Social Care and Disability. This letter will request a meeting with the minister to discuss Hugh’s Law, including the removal of the three-month waiting period before a child with a chronic condition such as cancer can apply for support.
Martin will continue to follow this campaign closely.